印度14歲少年患早衰症體重僅25斤

Nihal, 14, has wrinkly skin, withered limbs and a bald head because of the genetic disorder Hutchinson-Gilford Progeria Syndrome (HGPS).

尼哈爾，現年14歲，因爲得了早年衰老綜合症（HGPS）這一遺傳病，皮膚起皺，四肢萎縮，腦門光禿，樣貌如同啃養老金的退休工人。

He also weighs a tiny 12.5kg - just under two stone - stands at just 4ft tall and has had to stop school because his friends have started to tease ver the condition does not affect his brain so his mind will remain young despite his body's rapid decline.

此外，他體重區區12.5公斤，都不到2英石重，身高4英尺。尼哈爾不得不半途輟學了，因爲他的夥伴們已經開始捉弄他了。然而，這一情況並不影響他的大腦， 他依舊保持年輕人的頭腦，儘管身體正急速衰老。

Nihal, who lives on the outskirts of Mumbai, India, has now started clinical trials for a cancer drug that doctors hope will slow the ageing process. It is not clear if his life expectancy will be lengthened following the research at Progeria Research Foundation in Boston.

尼哈爾住在印度孟買市郊，已經開始了一項抗癌症藥物的臨牀試驗，醫生希望可以減緩其衰老過程。繼波士頓的早衰症研究基金會的研究之後，目前尚不清楚是否能延長其預期壽命。

In the meantime he has devised a bucket list in the hope of fulfilling his dreams such as meeting Honda's ASIMO robot and going to Disneyland in California. His father Srinivas said: "No matter how much time is left, I just want to try to fulfil my son's wishes for now."

與此同時，尼哈爾已寫列好了遺願清單，希望可以實現心願夢想，比如見見本田的阿西莫機器人、去加利福尼亞的迪士尼樂園玩玩。父親尼瓦斯說，“無論還剩多少時間，我只想盡力完成我兒子眼下的願望。”

Nihal appeared healthy until 18 months old when his parents noticed some light patches and dark spots on his skin. He then stopped developing normally, his joints became weak, his hair fell out and his skin aged rapidly.

尼哈爾直到18個月大還很健康，直到有天他父母發覺他的皮膚上有了淺色的斑塊和深色的斑點。接着他便停止了正常發育，關節變得脆弱，頭髮開始掉落，皮膚飛速老化。

Nihal went to Boston last December to undergo this treatment, which uses a cancer drug called Lonafarnib and reverses changes in blood vessels. Doctors do not know if the treatment will make him live longer but it has helped him improve the flexibility of his joints and helped him gain 4lbs (2kg) in weight.

尼哈爾去年十二月去了波士頓接受治療，用了一種叫洛那法尼的癌症藥物，逆轉了血管的變化。醫生們也不知道這樣會不會讓他活得久些，但這一療法確實幫他提高了關節的靈活性、幫他增重了4磅（2公斤）。

His family say he has a kind, gentle nature and gets on well with his two healthy siblings, sister Sonu, 11, and a brother Lucky, 4.

家人說尼哈爾本性和善、溫和，弟弟妹妹都健健康康的，妹妹索努11歲，弟弟樂嘉4歲，尼哈爾與他們關係和睦。