女孩患罕見“蓬髮綜合徵”

Meet an adorable girl, with an extremely rare condition that makes her hair as wild as Albert Einstein .

來認識一下這個可愛的小女孩吧，她患有一種極其罕見的疾病，讓她的頭髮看起來像阿爾伯特?愛因斯坦一樣狂野。

Shilah Calvert-Yin's incredible bouffant 'do' is caused by a condition known as Uncombable Hair Syndrome - which is believed to impact just 100 people around the world.

這位名叫茜拉?卡爾弗特?因的小女孩因爲蓬髮綜合徵而擁有這樣不可思議的蓬鬆髮型，據信全世界僅有100人患有這種蓬髮綜合徵。

Despite being compared to the famous physicist and getting a lot of attention from people in the street, Shilah, seven, said she loves her unique hair because "it's not boring like everyone else's."

儘管被拿來和大名鼎鼎的物理學家作比較，並且吸引了很多路人的目光，7歲的茜拉仍表示非常喜愛自己獨特的頭髮，因爲“看起來不像其他人的髮型一樣乏味。”

In the past she has been compared to Doc Brown from Back To The Future , but Shilah doesn't mind, as it is one of her family's favourite movies.

以前她還被人比作電影《回到未來》裏的布朗博士，但是她毫不在意，因爲這是她的家人最愛的電影之一。

Shilah, from Melbourne, Australia said: "It's not ordinary and it's not boring like everyone else's.

來自澳大利亞墨爾本的茜拉說：“我的髮型不像其他人的一樣平凡乏味。”

"Everyone knows me and remembers me - especially at school. All the grade levels know who I am.

“每個人都認識我並且能記住我，尤其是在學校的時候。所有年級的學生都認識我。

"I think my friends wish they had hair like mine."

“我覺得我的朋友也希望擁有像我一樣的頭髮。”

The family had no idea about Shilah's condition until about nine months ago, when a doctor informed them of UHS.

全家人一直不知道茜拉得的頭髮是什麼引起的，直到9個月前一位醫生告訴他們這是蓬髮綜合徵。

When explaining to others, Celeste said, people usually think it's a joke, or are completely intrigued by the condition and end up googling it.

塞萊斯特說，當她向其他人解釋時，人們通常會覺得她是在開玩笑，或者感到非常好奇，然後去上網搜索。

The syndrome is caused by a mutation to one of three genes - PADI3, TGM3 and TCHH - and though there is no cure, it is believed to become more manageable with age.

PADI3、TGM3 和TCHH這3種基因中任何1種產生突變，就會導致這種症狀。儘管現在沒有治癒的方法，但是隨着年齡的增長，頭髮將會變得可控。

In order to show off her fine hair, Shilah and her family also created an Instagram account, so that others could also learn from how the condition changes with age.

爲了展示茜拉漂亮的頭髮，茜拉和家人還開通了Instagram賬號，這樣其他人也能得知隨着年齡的增長這種症狀會發生什麼變化。

The youngster has also tried her hand at modelling - something her family hope will show the positive side of embracing such a condition.

茜拉還嘗試去做兒童模特，她的家人希望藉此表現出她接納這種髮型的積極的一面。

Celeste said: "Shilah draws attention everywhere she goes and always has since her hair grew through at about three months old.

塞萊斯特說：“茜拉無論走到哪裏都會引人注目，她大約3個月大開始長出頭髮後，就一直如此。

"Her older brother, Taelan, has been a fantastic support when other children make comments towards her or even touch her.

“當其他孩子們對她評頭論足甚至用手摸她頭髮時，她的哥哥泰蘭總會挺身而出。

"Having said that, adults can be just as juvenile and say some of the most random things or take photos of her and even touch her hair.

“話雖如此，但一些成年人還是會像不懂事的孩子一樣胡說八道、對着她拍照片甚至摸她的頭髮。

"Shilah is used to all the attention and has begun to manipulate and work situations in her favor.

“茜拉已經習慣了這種關注，並且開始學會如何掌控和處理這種情況，不會讓自己吃虧。”

"Hence why we decided that modelling will embrace her unique look and she has the personality and attitude to pull it off."

“因此，我們認爲她獨特的外貌適合模特職業，而且她的個性和態度能讓她做好這份工作。”